Diagnosis
- When did you first recognise your child was experiencing symptoms
caused by PCD?
- Can you tell me about how your child was diagnosed?
- What words best describe what you felt like before your child was
diagnosed?
- What words best described what you felt like when you heard the
diagnosis?
- What was your response when you learned your child’s diagnosis?
Did having a diagnosis to explain your child’s symptoms change things?
Has your life changed since having a child with PCD?