“when our first born was diagnosed, I mean oh my gosh, it was
horrific. I was petrified, I was scared, I didn’t know what was going
on, we didn’t have a clue what we were facing, didn’t have a clue what
they were testing her for, so it was very much a case of we were scared.
Whereas with our current child we knew exactly what they were testing
him for, we were 99% sure that he had it (PCD), so actually it was more
sadness that our thoughts, our worse fears kind of being confirmed I
guess.” (mother 3)
Once the child was diagnosed, most parents felt mixed emotions. They had
feelings of relief now having a name for their child’s condition mixed
with feelings of sadness because the child had a life-long condition
that always needed to be managed.