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Is Pre-assessment Counselling Needed to Prepare People for a Dementia Diagnosis? A Systematic Review
  • +2
  • Marie Janes,
  • Anna Buckell,
  • Bethany A Jones,
  • Miriam Sang-Ah Park,
  • Stephen P Badham
Marie Janes
Nottingham Trent University

Corresponding Author:[email protected]

Author Profile
Anna Buckell
Memory Assessment Service, Nottinghamshire Healthcare NHS Foundation Trust, Lings Bar Hospital
Bethany A Jones
Nottingham Trent University
Miriam Sang-Ah Park
Nottingham Trent University
Stephen P Badham
Nottingham Trent University


Dementia outcomes are better for those who receive early diagnoses, however, much stigma and fear surrounds help-seeking behaviours for dementia assessment, preventing intervention and support both for people with dementia and carers. Pre-assessment counselling for dementia involves the provision of a counselling service that occurs after approaching a clinician with cognitive or memory complaints, but before undergoing formal diagnosis of dementia. Pre-assessment counselling may help people with suspected dementia and their carers to understand and address concerns with dementia assessment and disclosure. Using PRISMA guidelines, four peer-reviewed publications involving clinicians, people with suspected dementia and carers and pre-assessment counselling were identified and reviewed. These studies used designs including random controlled trials, quantitative questionnaires, qualitative interviews and mixed methods research. The included papers ranged from 2007 to 2020. The impact of pre-assessment counselling is examined using content analysis. Themes including psychological adjustment for people with dementia, quality in delivering diagnoses for healthcare practitioners and the importance of including family members in the diagnosis journey were identified as the most significant impact of pre-assessment counselling. Limited literature exists to empirically evaluate the impact of pre-assessment counselling but the findings suggest that preassessment counselling provision is critical within the process of diagnosis.
03 Jun 2024Submitted to Advance
05 Jun 2024Published in Advance