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Gerber 2019 - Pre-print copy -What, how, when and who to ask.pdf (505.34 kB)
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Preferences for place of care and place of death: What, how, when and who to ask?

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posted on 20.05.2019 by Katrin Gerber, BARBARA HAYES, CHRISTINA BRYANT
As healthcare systems worldwide are confronted with increasing numbers of ageing and terminally ill patients, the topic of where people want to spend their last days has received considerable attention. However, the strategies that researchers and clinicians use to capture these end-of-life views vary greatly in four key questions. These include: what, how, when and who to ask about location preferences. We will argue that how researchers and clinicians choose to answer these questions directly influences their findings. Based on these considerations, we will highlight ways to improve future palliative care and empirical end-of-life studies by addressing the precision, methods, timing and sources of preference assessments. Only when we are able to accurately identify where people want to spend their last days, can we begin to meet the needs of patients as they approach the final stage of their lives.

Funding

Australian Government Research Training Program

History

Declaration of conflicts of interest

None

Corresponding author email

kgerber.research@gmail.com

Lead author country

Australia

Lead author job role

PhD Student

Lead author institution

University of Melbourne

Human Participants

No

Ethics statement

Theoretical discussion paper, hence no ethics required

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